Patient Partner Mentorship and Mentee Resources

 “A Patient Partner Mentor is someone who wants to help to make a positive difference in someone else’s  healthcare journey.” 

*Learning Resources linked in Pdf below - Please feel free to share 

Patient Partner 

 1) Research and identify how you want to self-identify  Patient Partner vs Patient Perspective Consultant

 2) Recognize and embrace your skills, knowledge & connections The Patient Revolution Community: Hope 

3) Reflect on the positives that you will bring to tables Volunteering can Lead to One Thing then Another

 4) Know and recognize your worth Engaging Community Members: A Guide to Equitable Compensation CHCS 

5) Take time to address vulnerabilities –trust building and learn to say ‘no’ 

Real World Challenges Partnering in Research / Self Care is Not Selfish

 Embrace Learnings

 1) Embrace curiosity and humility  Native Americans Know How Place Matters Place Matters Oregon

  2) Identify what you want to learn about & knowns-assumptions-unknowns  Words Matter The Patient Revolution: Non Compliance Victor Montori 

3) Recognize and embrace possible knowledge opportunities  Understand patient engagement in health system decision-making: a co-design 

 4) Reflect on what you consider reliable sources for information / ethics  The Patient-as-Partner Approach in Health Care- a Conceptual Framework 

 5)Take time to critically evaluate what your thoughts are Mindfulness and Being Present mindful.org 

 Careful and Kind Care

 1) Identify what careful and kind care is, both a practice and disposition The Patient Revolution: A movement for care Victor Montori 

2) Recognize and address where gaps are in your health care systems Three Considerations for Building Successful Research Partnerships 

3) Take steps to be the change/ make the change Listen, Empathize, Agree & Partner Bethany Yeiser Psychology Today 

4) Reflect on yourself, where your knowledge might have the greatest impact Creating Space for All - Caira Grey Johnson & Kevin Frick

 5) Take time to implement careful and kind self-care Leadership for careful and kind care BMJ article 

Advancing Expertise 

1) Identify where your gaps are in learnings and what you might want to achieve- Active patient involvement in undergraduate medical education 

2) Recognize and embrace how you might close those gaps Hidden in plain sight? Identifying patients authored publications 

3) Plan on how to curate knowledge on an ongoing basis Patient, Family and Care Partner engagement in Learning Health Systems

 4) Reflect on experiences where you have made a positive difference The Sweet dance between patients and clinicians 

 5) Take time to pat yourself on your back for your achievements Partnering in research is ‘with’ patients not ‘on’ patients 

Develop and Nurture your Niche

 1) Identify what you appreciate in your partnering efforts Primary Care Intervention Evaluation of a Novel Co- Design

 2) Recognize and embrace what you excel at and what you like to do Finding Happiness in any Challenge - Rhonda Y. Williams & Elia Gourgouris 

3) Think about where you would like to be/ your role in the future Patient Advisor to Patient Co-Investigator 

4) Reflect on your passion for patient partnering- why? Towards Conceptualizing Patients as Partners in Health Systems 

5) Take time to go out in nature and just be Healing in Nature Nitin Das   

Find and Connect 

1) Know your interests and expand your vision  Perhaps advance a peer mentoring program Mass General 

2) Identify individuals or organizations for future possibilities / networking  Sharing the Wealth: Mentoring Newbies to Advocacy (health-hats.com)

 3) Recognize and embrace your abilities to convey careful and kind care  Patient and Care Partner Community - The Beryl Institute 

4) Reflect on who you want to connect with, how and why-expand your circle Graduate Mentoring Center 

5) Take time to thank others as well as yourself Mentoring Partnerships are Bi-directional Thank them

 Be a Mentor 

 1) Develop an interest to be a mentor – remain curious and humble  The Importance of Patient-to-Patient Mentorship (patientpower.info) 

2) Identify who you might mentor and who they might mentor Gender Differences in Faculty Perceptions of Mentorship/Sponsorship 

3) Recognize and embrace we all have more than one mentor Legacy and Succession Planning for the Seasoned #141 (health-hats.com)

 4) Reflect on priorities and goals for change / how you might give back Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care, 

 5) Take time to ensure you are not overcommitting – own your time  Reflections on engagement by patient partner: How it can go wrong  

 Evaluate 

 1) Successes Preparing for Patient Partnership /Partner Engagement and Evaluation

 2) Challenges Facing up to the Challenges: Honest discussions on real world risks

 3) Diversity and Equity Involving diverse community members working towards equity

 4) Opportunities for Advancement Coming Soon IPRO PFCA Tool Kit 

5) Vulnerability  Patient-Partners as Educators: Vulnerability Related to Sharing Lived  Experience